Quality of Life


Recently I was reading on the internet about the struggles some parents have when they found out their baby would be born with Spina Bifida.

Their shared concern was the  baby’s quality of life.   

It got me thinking about my own journey as a person with Spina Bifida.   

I was born with a more severe form of Spina Bifida.  I have a shunt that drains excess fluid from my brain because of hydrocephelus which is common among babies born with my severity of Spina Bifida.   I am paralyzed from the waist down.  I have used a wheelchair since I was a very young child.   

Although I have had many health issues throughout my life,  I would have to say that I have always had a good quality of life.  I was involved in sports early on.  I taught myself to swim at the age of 7, to walk on my hands at age 5,  On my own I learned the skill of ventiloquism.    

Many of us with Spina Bifida are even able to have our own families.  I never got around to marriage, though.  

I have my own home and vehicle.  I have learned how to cook and do laundry.  

I’m an amateur musician and have played in my church band.  As well, I write and compose my own songs.

While I have definitely had struggles throughout my life, one thing remains true, I have accomplished so much in my 48 years.  Thanks to family and friends I have a good social life. 

One of the greatest joys I have is owning a dog.  And soon two.  

Wow!  I just have to thank God for the many blessings He has given me.  It is because of God I have overcome so many trials.  Yes, based on my own journey, I believe a person with Spina Bifida can have a good quality of life.  Below is a video of me walking dogs.

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